PLEASE EMAIL ME WITH ANY QUESTIONS REGARDING THIS RAFFLE/DONATION AND I WILL ANSWER ALL EMAILS.firstname.lastname@example.org
My name is Tim House.
I created BGEGiveaways and with the help of a few friends Daniel Frye
and Justin Bourn
, we are coming together to raise money for these two families to support anything they may need help with. We are providing a chance to win 2 Big Green Egg MiniMax's, a YETI cooler and a mystery prize valued at at least $100. If you are a winner, you will be able to pick up your new Big Green Egg at your local Egg Dealer, so shipping is not an issue, and everyone can participate.
Please visit all the links below for more information.https://www.facebook.com/groups/BGEgiveaways/Avery and Anna Reese both have been diagnosed with Glycogen Storage DiseaseFor more information:http://alturl.com/dp9zf
please visit AverysHope.orgAlso share the Facebook page http://Facebook.com/AverysHope.orgIvy has been diagnosed with Acute Myeloid Leukemia (AML)For more information please visit:http://tiny.cc/x2vc9xTo learn more about Ivy and her journey:https://www.facebook.com/Ivylousleague/
From the Family of Avery and Anna Reese:
Our beautiful daughter, Avery, was diagnosed with Glycogen Storage Disease when she was 9 months old. We have spent the last 8 years of her life struggling to cope with this disease and all the changes it has brought to our lives. In 2014, we were blessed with a second beautiful daughter named Anna Reese who was also diagnosed with Glycogen Storage Disease.
GSD is a rare genetic disorder centered in the liver and because of a missing enzyme the body cannot maintain normal blood sugar levels without constant feedings. Children with this disease must be fed every one to four hours, day and night, and must follow a very strict dietary regimen. Missing a feeding by just 30 minutes can have catastrophic effects, including seizures and death. There are many times in the past 8 years that we have watched our children endure this disease and been overwhelmed by a feeling of helplessness. We have decided there is something we can do. We have decided to fight. Luckily, we have some great physicians and researchers fighting with us. We established Avery's Hope Fund to raise money for Glycogen Storage Disease research. Our hope is that a cure is found and these children can live their lives without this disease.
100% of the donations that we receive go to benefit the Glycogen Storage Disease program at the University of Florida. With the combination of advances in gene therapy, more public awareness, and financial support, a cure is just around the corner.From the Family of IvyLou:
Since she came into our lives November 2013, Ivy has brought us immeasurable joy. Diagnosed before she was born with Down Syndrome, we knew she would face some challenges as she grew up. But her family, including her parents and three older siblings, were committed to standing by her through all of them. To our delight, we watched her grow into the feisty, funny, and beautiful two-year-old she is today.
On September 1, 2015, Ivy received a new diagnosis--Acute Myeloid Luekemia (AML). AML is a rare cancer that interferes with the production of normal blood cells through the rapid growth of abnormal white blood cells, which accumulate in the bone marrow. Children with Down Syndrome have an increased risk of AML.
While this is a challenge none of us expected to face, we are committed to standing by our brave and amazing girl as she and her doctors "kick cancer's butt!" Ivy is currently undergoing chemotherapy while her parents stay at Ronald McDonald House. Your donations will help Ivy and our family tremendously during this physically, emotionally, and financially difficult time. Our girl has risen to meet many trials in just two short years with grace and tenacity. AML doesn't stand a chance.