Rett Syndrome is a neurodevelopmental disorder that almost exclusively affects girls.  Typically girls with Rett have no verbal skills and about 50% of these girls cannot wallk.

Frankie Says Fight Rett.org, Inc. (
www.frankiesaysfightrett.org) was created to provide broadened awareness of Rett Syndrome.  The organization raises support from donations, events, raffles, concerts, and other means to further the mission of fighting Rett Syndrome.

The funds that are raised are used to expand awareness, provide education, and to help friends, relatives and parents of girls with Rett Syndrome. Funds are also used to benefit children to provide supplemental funds for travel expenses for medical care and the cost of medical devices needed to assist in their day-to-day lives. We also support research in finding treatments and ultimately a cure for Rett Syndrome.

FrankieSaysFightRett.org is a 501(c)3 Tax Exempt Organization. Tax ID 46-5684253.


  • $3,440.00

    raised of $5,000.00 goal
  • 0 days

    left until we draw

What You Could Win

  • Beautiful Epiphone Guitar Signed by Vince Gill and Amy Grant

    We are pleased to offer this beautiful Epiphone Dreadnaught Guitar that was graciously signed by Country Music legend Vince Gill and Pop and Christian recording artist Amy Grant. The raffle includes the signed guitar and a soft carrying bag.