The Dragon Master Foundation started by creating an information consortium to better help doctors and researchers find, store, and share the clinical trial information. With this shared effort of team work, doctors can access the information just like doing a search on google.
"A diffuse intrinsic pontine glioma (DIPG) is an aggressive type of childhood cancerous tumor that forms in the brain stem. That’s the area at the base of your brain that connects the brain to the spine. The brain stem controls most of your basic functions: vision, hearing, talking, walking, eating, breathing, heart rate, and more.
Gliomas are tumors that grow from glial cells, which are found throughout the nervous system. They surround and support nerve cells, called neurons.
DIPG is difficult to treat, and it most often develops in children between the ages of 5 and 9. However, DIPG can affect anyone at any age. The condition is rare. About 300 children a yearare diagnosed with DIPG in the United States." - www.healthline.com
"About 6 months ago, we met Jace, a 20 year old who seemed to be on the fast track to a great life. He is a great guy - smart, funny, kind - everything you would want in a son, brother or friend. But the reason we met Jace was that he had just been diagnosed with an extremely aggressive form of brain cancer called DIPG. The prognosis for DIPG is very bad, and patients usually pass away well under a year after diagnosis. Worse yet, Jace is "old" for a DIPG patient. Typically, children are diagnosed closer to the age of 6. Neil Armstrong's daughter died from this disease back in 1962, and there really have not been any major advances in the treatment of the disease since then - until now." - The Dragon Master Foundation
Right now a young pharmaceutical company is developing a drug that has shown great success in reducing the growth of these tumors. The drug alone still isn't enough but combined with other forms of therapy it may prove successful. The Dragon Master Foundation is trying to raise $125,000 to help fund the clinical trial next year so the kids suffering from DIPG may have a chance of seeing their next holiday.
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