Welcome to the 4th Annual Every Link Matters Golf Tournament! Along with the thrills of the game, our 50/50 raffle offers participants a chance to win and directly impact the lives of families dealing with KBG Syndrome.

Last year, our community raised over $10,000 through this raffle. In a heartwarming gesture of generosity, our winner, Barry Sobel, chose to donate his winnings back to support the cause. This act of kindness exemplifies the spirit of our community, where every contribution fosters hope and supports critical interventions.

KBG Syndrome, a rare genetic condition, presents various challenges to affected children and their families. From dealing with distinctive facial features and skeletal abnormalities to managing developmental delays and medical complexities like heart conditions and hearing loss, the journey is arduous. Parents are often tasked with coordinating multiple specialist appointments, adapting learning environments, and securing necessary treatments—many of which are not covered by standard health insurance.

The funds from the raffle go a long way in easing these burdens. They help provide medical equipment, educational resources, and support services that are vital for enhancing the quality of life and care for these children.

By participating in this year’s 50/50 raffle, you're not just in with a chance to win; you're part of a larger effort to uplift families navigating the complexities of KBG Syndrome. Let's come together to make a significant impact, inspired by examples like Barry's, demonstrating the profound difference we can make in the lives of our community members.

Join us, contribute, and let’s continue to rally around our remarkable KBG families at the 4th Annual Every Link Matters Golf Tournament!